Showing posts with label Cancer. Show all posts
Showing posts with label Cancer. Show all posts

Thursday, October 18, 2018

Discovering Joy In Memory Eternal



Roaring laughter and exhilaration breathed new life into my parents’ living room, where a group of my father’s closet friends and professorial colleagues gathered on this day in 1996 to fete his 70th birthday. It was a radical departure from the everyday remorse that created an atmosphere in that room, so heavy that it was like trudging through cement while blinded by fog. 

The small party was a surprise organized by my mother and me to honor my father, Michael William “Brother Mike” Gural. The house where I was raised and where my mother still lives alone, has played host to more memorials, wakes (including my maternal babushka spending the night in an open casket in the dining room), and other rituals focused on death and loss, rather than cheerful festivities. Up until two years ago when my son Michael Alexander guided me back to the church with a commitment to faith that didn’t involve profound and constant sadness, misery, guilt, and mourning, I thought I was “sinning” if I wasn’t constantly lugging a ponderous sense of worthlessness.

Looking back to Oct. 18 22 years ago, I now realize the joy that transformed the living room into a celebration of life was the most truly Orthodox experience I’ve had there, in the house where I was partly raised. (I spent most of my formative years with my maternal babushka and degushka in a very different multi-ethnic urban neighborhood, which made going to school in a very white, very quintessential New England, suburb a culture shock.) My babushka and my father died in that house. My babushka’s death bed remains as a shrine, and my childhood bedroom where my father drew his last breath is where my husband and I sleep when we visit. My mother tempestuously scolded me several years ago when I commented that it was depressing to sleep in that room and eat in that dining room: “Obviously, you didn’t love your grandmother or your father!”


 (This photo was taken in the early 2002, at my 8th floor walk up on 178 Thompson St.. It was my dad's last visit to New York. His pain, walking up 24 tiny pre-WWI flights of stairs, didn't dull that trademark Brother Mike smile.)

I must remind myself to embrace that joyous Oct. 18, 1996, when Brother Mike’s crystal blue eyes glistened and his impeccably white, straight teeth shined as he flashed a fixed (well, for the duration of the celebration) smile. That’s the image of my father I strive to hold dear, every minute. That image reminds me so much of the grandson he never met. My son’s hand gestures, when he begins to wax philosophical about a correlation he’s just discovered, uncannily mimic those of the дідусь (didus) he never met.

Of course my father had a dark side, though the best of it was his black humor and his penchant for classic horror and the occult, which I immediately adopted. He told me, repeatedly over three decades: “If you can accept that life in 99 percent disappointment, you may find happiness.” He joked on Oct. 18, 1996, “You must all know something I don’t. Clearly, I’m about to die.”

Brother Mike, who never took an aspirin or any prescription medication, who swam and exercised every day, who labored outdoors every day, who never smoked, who drank only socially, who ate vegetables he grew, who voraciously studied natural medicine and curated his own supplements, was in fact “dying” on Oct. 18. 1996. Specifically, despite his doctors’ incessant claims that “you’re healthier than any of 30-year-old patients,” my father was dying of cancer that went undiagnosed until four years later, when it was Stage IV and metastasized to every vital organ, and eventually his brain.

In an effort to maintain the joy that permeated Oct. 18, 1996, I won’t rant about the failures of health care in western Massachusetts, where fraud and incompetence are rampant. I will refrain from wallowing in the regret that my parents chose to not seek treatment with top oncologists at Dana-Farber or Memorial Sloan Kettering, where my former colleagues used their influence to score “impossible” appointments.

Memory Eternal, Michael W. "Brother Mike" Gural, who was born in Newark, N.J., on Oct. 18, 1926, and who fell asleep in Wilbraham, Mass., on Friday, June 21, 2002.

“It's life that matters, nothing but life—the process of discovering, the everlasting and perpetual process, not the discovery itself, at all.” _ Fyodor Mikhailovich Dostoevsky












Thursday, February 5, 2015

The Binds of Birthplace and Social Aspiration

Certainly I cannot compare my early childhood with my mother’s, as by all human standards I have been extremely fortunate. Yet we both were plagued by very similar social pressures, brought on by our very different circumstances of birth, manifesting in stereotypical opposites.

A first generation American born into the middle class, only because my maternal grandparents and my parents worked around the clock at menial jobs and spent as little money as possible, I envied the new money spendthrift heyday of the 1980s and loathed the old money elitism of established New England.

Constantly reminded that I was not like the other kids, whether it was shopkeepers claiming I had a German accent or girls teasing me for wearing off-label clothes, I quickly developed a complex further exacerbating my abnormal behavior. My early attempts at embracing a preppy look were thwarted by my inability to convert prominent Eastern European features into generic Waspiness. My Sperry Top-Siders from Marshalls were “irreugular” (the wrong shade of stone) and my whale print raincoat wasn’t reversible and maybe not even real vinyl.



I was barely a tween when I learned about David Bowie, and from the son of a Russian Orthodox priest. I’d found my real cultural identity, the one I still embrace, before I understood many of the concepts that defined it. As I learned everything I could about the history of counter culture, I was baffled at how my mother escaped any brushes with the celebrated 1960s youth movement. How could she choose to become a social conformist over a free spirit? It made no sense to me that someone who’d been persecuted and oppressed from birth would opt out of the counter-culture and drop into the normative.

Not to undermine all her struggles of assimilating into American society, as her first years in the United States brought on suicidal thoughts. But owing to a regulation hottie status maintained by a daily diet of three hard-boiled eggs and three small oranges, my mother blossomed into the prototypical high school sweetheart with movie star looks. She ruled the workplace in high fashion and perfectly coiffed hair, her bosses inviting her on their family getaways, gifting her with golf clubs and pardoning her days off. She effortlessly switched careers, without worry of scoring her next job in a hetero-normative marketplace where a bright, educated woman with an exotic name and a flawless complexion would always be hired.

For years I’d be told by people, mostly men, my mother had worked with, studied with or socialized with in her younger years, that “she was so beautiful,” even “the most beautiful woman,” and of course with a “figure to die for.” This often was punctuated by “and you look just like your father.” It was exactly what an insecure, self-conscious teenage girl did not need to be told.

Somehow I was, by my physical imperfections, cursed by my Eastern European heritage while my mother had transcended the ideal of American beauty.

It’s taken me decades of feeling inadequate and inferior to my mother’s enviable appearance in her younger years (she lost weight during her pregnancy with me due to illness and complications and was stunning and slender immediately after my birth), to realize how we could have chosen such different social aspirations.

My mother’s desire to be a typical American teenager is born from her lack of any identity, any access to clothing or amenities of any kind and any connection to a society, as a young child. My exposure to the 1980s stock- and real estate-market wealth explosion (and implosion), as well as the old guard New England mainstay, would fuel my ongoing passion for a pop art, post-punk rebellion.

I am ashamed when I curse America, knowing how being born here is a privilege, particularly for someone of my family background. Still, I see how this country continues to force outsiders into assimilation and how my mother’s success at gaining one-time social prominence has made it more difficult for her to cope with the struggles of post-traumatic stress and survivor guilt as she now lives in (largely self-imposed) isolation. After giving up her own life to care for at home her sick father and then her ailing mother and then my cancer-stricken father, she never has regained any ambition to live the American dream.


Wednesday, October 16, 2013

The Shifting Emotion of an Immoveable Feast

To the modern American, or global citizen, the notion that for the last 11 years I have begun contemplating what to prepare for dinner on October 18 weeks in advance may seen obsessive or silly, unless of course, I am a caterer or planning some fabulous fete for the beautiful people. (The latter, of course, would require my hiring the perfect caterer.)

My father was born on Oct. 18, 1926, and died in 2002. Planning what to make for dinner, generally one of his favorite old world meals – the old world being some mix of what was born of my Ukrainian, Polish and Russian roots.

Call it comfort food, but most certainly not in the mainstream America-meets foodie way of indulging in the food itself. It comforts me to commemorate his memory by creating and serving something he would enjoy. Of course, growing up dirt poor in the slums of Newark, N.J., my father learned to appreciate – or at least to never waste – any food.

My father was not religious in the go-to-church-every-holy-day-or-feel-really-guilty-about-it-way, like my mother. There are 13 major holy days in the Russian Orthodox Church and a much longer list of secondary holy days to commemorate various events in the lives of prophets, apostles, fathers of the Orthodox Church, martyrs, saints and others who have aided the propagation of Christianity and the Orthodox religion, as well as certain events in the life of the church. Those days are divided into movable feasts, which have no definite days or even months appointed for their celebration, and the immovable feasts, which are always celebrated on definite days of the year, by the Julian calendar.

Suffice it to say, commemorating the dead, both on their death days and birthdays, is an immovable feast.

My father, who felt more kinship with Buddhists and Sikhs, practiced meditation mostly at home (though sometimes he’d visit a gurdwara with his best friend, a Punjabi Sikh). He attended Russian Orthodox services on the highest holy days, namely Pascha, and of course always for funerals and other services for friends of the family. In the end, my father, who died of Stage IV colon cancer metastasized to the liver, requested to be buried alongside where my mother will be laid to rest and in the plot next to her parents, at one of three cemeteries at Holy Trinity Monastery in the hamlet of Jordanville in central New York State’s Herkimer County, northwest of Albany and east of Syracuse. Blink or sneeze while driving on remote winding roads past sprawling farmland and nothingness -- save for the monastery with the cathedral’s imposing gilded cupolas and bell tower -- you will miss Jordanville. Founded in 1928, the monastery was listed on the National Register of Historic Places in 2011 and is the first Google hit for Jordanville.

Family friends who have made what most call the pilgrimage to the monastery and cemetery have alluded to the mystical, otherworldly qualities of a place so alien from any America (or present time) they’d ever experienced. This includes hardcore atheists and agnostics.

Why my father chose to be buried there will always elude, even haunt, me. Most people closest to me say it’s because he wanted to be besides my mom, at least in the end. Those who have witnessed the terror of Stage IV colon cancer know what it does to the brain. Those who have read Russian literature know what happens to men facing their own mortality. The deathbed confession is not fictional in my world, if not quite as dramatic. My father was a philosopher and intellectual, and in many ways was like Stepan Trofimovich Verkhovensky (the character in Dostoyevsky's “The Devils”), although my father cared deeply and dutifully for his children while Stepan put his own interests first and was a scumbag to his son. And I doubt my father picked his final resting place because he considered himself immortal since his love for God will never die.

Why my father chose the church burial and ongoing mourning process, with all their ancient and elaborate rituals, I will never know. I do know that his decision impacted me deeply and profoundly and rattled my own beliefs – or lack thereof. If I am not compelled to follow the church rules as a devout Russian Orthodox Christian, I can at least provide a fitting memorial tribute – just twice a year – to commemorate his life on the dates of his birth and his death.

This all now sounds even sillier to most Americans, or global citizens, I’m sure. But I do derive some comfort, some closeness to my father’s legacy and my ethnic heritage by making a special meal.

Along with the menu planning comes an annual bout of profound sadness, if not deep depression. My therapist, who is far removed from this old world where I dwell emotionally, says I need to overcome this depression and to create a celebration where I invite friends over for a feast without telling them why. That’s funny, as Russians (the Russians who raised me, not the people hail from there now) never tell other people about their own birthdays and would never, ever, invite other people out with the expectation of others paying any part of the bill. It is equally wrong to not prepare and present a meal in honor of the dead on “their day,” religiously on the day they died and culturally on the day they were born.

I do not know where I stand in this cultural framework – trapped somewhere between the vast divide of a bygone Russia and a hypersocial world where people celebrate themselves on any and every platform, posting old photos of departed loves ones as a substitute for traditions they have shunned. I'm not eager to revert to a world where the closest women come to heroism is martyrdom in the form of Nastassya Filippovna. I’m also not ready to embrace a soulless world where the number of characters you're allotted dictates the depth of your musings.

I think I’ll make piroshki, to start.  

--- NOTE: This entry is the first in a series of ideas, themes or stories that will eventually appear in a novel based largely on my mother's life. Working novel title: Lubachka