“I tell you, the old-fashioned doctor who treated all
diseases has completely disappeared, now there are only specialists, and they
advertise all the time in the newspapers. If your nose hurts, they send you to
Paris: there's a European specialist there, he treats noses. You go to Paris,
he examines your nose: I can treat only your right nostril, he says, I don't
treat left nostrils, it's not my specialty, but after me, go to Vienna, there's
a separate specialist there who will finish treating your left nostril.” Fyodor
Dostoyevsky, The Brothers Karamazov
It seems finding the right medical attention would have been
easier in 1880 Russia than it is now for my mother in 2015 Western
Massachusetts. At least 135 years ago, there was some humor to be culled from
the absurdity of the process.
My mother has been ill with a few possibly related symptoms.
It’s easy to jump to conclusions, and naturally the worst-case scenarios plague
me day and night.
I’m not a doctor, so I cannot diagnose and treat her. The
problem is the person “treating” her isn’t a doctor either. Trapped in Western
Massachusetts, she is limited by the number of medical practitioners she can
chose from without having to travel to Boston or New York, or Paris or Vienna, which
she doesn’t want to do, at least not for repeat visits.
The utter incompetence wrangled in outright arrogance of the
Western Massachusetts “medical community” astounds me. My mother has been
mistreated in so many ways. I’m often tempted to find a lawyer to make the case
for medical negligence, even abuse.
Whether it’s personal or just the way this small-town system
disrespects the elderly, my mother sees a physician’s assistant rather than a
medical doctor. The practice claims this is all she deserves, despite have
Medicare along with a pricy state plan my father had paid into for decades as a
state university professor. My mother says this non-MD is “nice,” but yet every
time she leaves that office her health continues to decline.
Meantime, my mother has been banned from one of the few
specialist offices in this insular community, because she went to see another
specialist, one time. It is against the “office policy” to “allow patients back
after they have left the practice,” say the churlish staff who command the
phones and act as gatekeepers for anyone with any potential intelligence.
For my mother, the challenge of finding doctors to treat her
among these parochial confines, is complicated and restricted by an abundance
of those who have failed to diagnose and properly treat both my mother’s
parents, and my father. All three arguably suffered more than required and died
prematurely due to a lack of proper medical attention, even negligence. My
mother had been encouraged to file negligence claims. If only for fear of being
further ostracized from the Western Massachusetts pond of medical
professionals, she refused to take any legal action.
Yesterday, when I called her from my office to check on her
latest and most alarming symptom, I asked if she’d made a specialist
appointment. After enduring inane phone calls with the office that refuses to
allow patients who have “left the practice” back, I embarked on a search for an
office with any semblance of compassion.
I finally found another specialist practice, with a far less
surly receptionist who heard my plea for my mother’s immediate health woes. Her
symptoms constitute what merits a 911 call, but she’ll never make the trip to
the ER or consider the post-insurance expense of an ambulance. Meantime, her
“primary care” office, by denying her visits with a physician, repeatedly
dismisses these critical red flags.
In the midst of this painful conversation -- she was choking
back tears and riddled with anxiety and I was mustering any ounce of emotional
strength to not openly and loudly weep, instead gnawing the insides of my mouth
to keep mum – she shifts gears.
“I know you don’t like taking about funerals,” she opens her
new train of thought. This has begun many conversations that have lead along a somber
path in my mind and heart, and she knows that.
“But I have to make a decision about a pre-payment I made …”
I’ll abort the conversation, as the minutae of this doesn’t
add any substance to the story.
Many hours after my unsuccessful attempts to answer her financial
advice query, my husband -- who is far wiser and better equipped to advise her on
such matters – managed to elicit her sardonic humor as he explained that her
pre-payment was “safe.” She joked that perhaps she’d selected the wrong coffin
color, as her eyes are blue, and they’d be closed anyway. I lack the disarming
charm to win her jest.
As my husband puts it, “all she knows is death.”
From her early childhood, as the sole surviving sibling,
watching her youngest peers, family, and other loved ones, shot down, blown up,
brutally murdered, or die from starvation or exposure to elements, it’s no
wonder this obsession with death seems “normal” to her. Moreover, none of the
lives taken during her early years in prison and work camps, and on the run from
various enemy factions, have any real existence after death. There are no
marked graves. She has vague recollections of which oblast (region) some were
dumped into mass graves. There was no opportunity to mourn properly, to
practice any ritual, to honor the dead in any way, at the time of their death.
Even in her “free” life as an American, she has witnessed
decades of anguish and torment, especially with the extended illnesses of her
parents and her husband, all of whom she cared for alone, at home. She spared
no expense for their funerals, but is frugal planning hers, aside from wanted
to be sure limo services, taking her survivors 180 miles to and from her home
to the monastery, are paid for.
To her, the right of burial is a great honor. I just wish I
could make it easier for her. Coming from a very different perspective – one of
weakness and a lack of the real-life experience that most people in a violent
world must endure -- I empathize, but so detest the business of death in the
United States, and want no part of it. For her, even the most gruesome of
“parlors” offers a dignity that doesn’t exist during war or in death camps.
By the time I was my son’s age, 5½, I’d attended dozens of
funerals with open caskets. After all, it’s just an extension of Russia’s
death-laden folktales or skazki. And those are for children.
Vladimir Propp's The
Historical Roots of the Magic Tale (1946) was criticized for being too
dependent on Western scholarship and, worse yet, placing Russian narrative in a
global context. Written 18 years after his Morphology
of the Folktale, which was panned for being too formalist, Propp aimed to
prove that folktales originated in ritual, especially initiation and funeral
rites. In order to avoid prison and losing his professorship, Propp’s
subsequent work, Russian Heroic Epic
(1958), would take on a more Marxian, even Marxist, tone. But seven years
before his own funeral, Propp returned to the acceptance and explanation of calendrical
ritual in Russian Agrarian Holidays (1963).
To this day, I dream of mass graves I have never seen, but
was told about as a young child, as well as funerals, past and future. My
science-focused son speaks frankly and openly about death and dying, even as it
relates to humans. But he has yet to ask me about a funeral. Trust that with my
own myth-steeped experience, that’s the “big talk” I most dread as a mother.